Scottish Parliament Endo Awareness Month ‘23
Earlier this week, I had the honour of speaking again at The Scottish Parliament for Endometriosis Action Month about my lived experience with endometriosis and the need for more patient-centric care. It was an incredible opportunity to share my story and to join forces with passionate leaders, including Monica Lennon MSP, Prof. Anna Glasier OBE - Scotland's Women's Health Champion, Emma Cox CEO, Endometriosis UK, and Women's Health Minister Maree Todd
During the event, I also emphasised the importance of effective communication in managing patient care. The toll that a cancelled appointment or surgery can have on someone's mental and physical health, with limited communication, is shocking. It is imperative for the government and the NHS health boards to do better in this regard.
As someone who has lived with endometriosis for over 15 years, I understand the challenges that come with navigating the condition. When other conditions are thrown into the mix, it can become even more difficult. This is where volunteers play a crucial role in the endometriosis community, as they offer support and resources to others despite fighting their own battles. We, as volunteers, do this because making a difference in even one person's life by helping them feel less alone is a significant victory.
The event was inspiring, and I was thrilled to see so many familiar faces and advocates fighting for change. It's time for us to come together and raise awareness about endometriosis and the challenges that women face in accessing appropriate care.We need to continue to speak out about our experiences and work together to create a more patient-centric healthcare system. This event was a step in the right direction, but there is still so much work to be done. We need to keep pushing for change and advocating for better care and support for women with endometriosis.
I'm grateful for the opportunity to have spoken at The Scottish Parliament and for the chance to collaborate with so many passionate leaders in the fight against endometriosis. Let's continue to work together to create a world where women's health is prioritised, and patients' voices are heard. And let's never forget the vital role that volunteers play in this ongoing battle.