Navigating Endometriosis: Empowering Women with Information and Support

Endometriosis is a complex condition that affects millions of women and those assigned female at birth worldwide. It can cause a range of symptoms, including painful periods, pain during or after sex, pain when using the bathroom, heavy menstrual bleeding, and in some cases infertility. Unfortunately, endometriosis is often misdiagnosed or undiagnosed, leaving women to suffer in silence.

As someone who has navigated my way through endometriosis, I know firsthand how difficult it can be to manage the condition. But I also know that there is hope. By arming yourself with information and seeking out support, you can take control of your health and live a full and happy life.

Here are some tips for navigating endometriosis and empowering yourself with information and support:

• Educate yourself: The more you know about endometriosis, the better equipped you'll be to manage your symptoms and advocate for your health. There are many resources available online, including reputable medical websites,  patient forums, and private support groups ( to list a few)  where you can connect with others who are going through similar experiences. To help get you start, I’ve listed the top 5 that helped me when getting started. 

• Endometriosis UK 

• Nancy’s Nook (US based, but medical based information) 

• British Society for Gynaecological Endoscopy (BSGE) Endo Clinics  

• Glasgow Endo Support Group / Dundee Endo Support Group

• Endometriosis | NHS Inform

• Find a healthcare provider who specialises in endometriosis: Endometriosis is a complex condition that requires specialised care. Look for a healthcare provider who has experience treating endometriosis and who takes the time to listen to your concerns and answer your questions.  If you’re in the UK, the BSGE is a great place to start, and if you’re in the US, Nancy’s Nook has a list of specialists by state (but do remember to check if they take your insurance) 

• Build a support network: Living with endometriosis can be isolating, but you don't have to go through it alone. Connect with others who are going through similar experiences, whether it's through a local support group or an online community. Having a support network can provide you with the emotional support you need to manage the ups and downs of endometriosis. Below I’ve provided some great support groups here in Scotland, if you’re elsewhere in the UK or in the world, please feel free to reach out and I can see if there’s one local to you. 

• Ayrshire

• Fife

• Forth Valley

• Glasgow

• Shetlands

• West Coast & Arran

• Dundee

• Edinburgh

• Grampian

• North Highlands

• West Lothian

• South of Scotland

• Practice self-care: Living with endometriosis can be physically and emotionally taxing. The most important thing to remember is that it’s okay to rest and it’s okay to do so without feeling guilty (which I struggle with personally) but having those rest days and listening to your body can really help. Make sure you're taking care of yourself by eating a balanced diet (it’s okay if all you can manage is comfort food during a flare),  getting fresh air when possible, and engaging in activities that bring you joy.

Navigating endometriosis can be challenging, but by arming yourself with information and seeking out support, you can start to feel more in control of your health both physically and mentally.  Remember, you are not alone in this journey, and there are resources available to help you along the way. Let's empower each other to navigate endometriosis with confidence and strength.

Disclaimer: Please note, I am not a medical professional. All written content is based on my own personal experience and research. The information provided on this website is for informational purposes only and is not intended to replace professional medical advice, diagnosis, or treatment. If you have any concerns about your health, please consult with your healthcare provider or contact your local GP, NHS 24, or 999.